@article {Niznick10.1212 / WNL。0000000000206879,作者= {Naomi Niznick维多利亚Saigle和玛丽亚·路易萨马蒂约瑟芬Laframboise晓惠咋和克里斯·安德森和贾斯汀Presseau Micha {\“e} l查斯{\ ' e}和Lauralyn麦金太尔迪安•弗格森和Alexis F鲟鳇鱼弗兰{\ c c} ois Lauzier Stephan Mayer和Shouri Lahiri和蒂姆•拉姆齐和巴蒂尔英语}title ={蛛网膜下腔出血病人改良Rankin规模的相关性研究:国际横断面调查},elocation-id = {10.1212 / WNL。={2023}0000000000206879},年,doi = {10.1212 / WNL。出版商0000000000206879}= {Wolters Kluwer健康,公司代表美国神经病学学会},文摘={背景和目标:有明显异质性报告结果的测量在动脉瘤性蛛网膜下腔出血(aSAH表示)半岛投注体育官网的研究。改良Rankin规模(夫人)是最常报道的功能结果。夫人着重于身体残疾,但是许多aSAH表示幸存者经历sequalae在其他领域,和夫人aSAH表示幸存者可能因此不捕获的结果重要。本研究的目的是评估的临床相关性夫人作为一个研究结果衡量人们生活aSAH表示。方法:我们进行了一次国际横断面调查355年aSAH表示幸存者,家人和医护人员评估patient-perceived结果与太太太太是评估之前使用一个基于web的工具进行验证。结果:响应率为60 \ %;受访者来自7大洲由86 \ % aSAH表示幸存者和14 \ %家庭成员/照顾者。自我评价结果之间的协议和夫人很穷(卡巴0.26(可信区间0.14 - -0.39))。172受访者自我评价有很好的aSAH表示结果,122(71 \ %)0 - 2的比分太太19 \ %的受访者有好的结果,基于测量0 - 2分的夫人,自我评价,有一个贫穷的aSAH表示结果。 When the mRS score was dichotomized as 0-3 corresponding to a good outcome, agreement between the score and self-assessed outcome remained poor with a Kappa score of 0.40 (CI 0.20-0.60). Thirty per cent of respondents felt that the mRS should not be used as an outcome measure in future aSAH trials.Discussion: The findings suggest that there is poor agreement between aSAH survivors{\textquoteright} self-assessed outcome, their actual mRS score and the dichotomization of the mRS score into good/poor outcomes. Patient-centered and -informed outcome measurement tools are needed to guide the aSAH research agenda.}, issn = {0028-3878}, URL = {//www.ebmtp.com/content/early/2023/02/07/WNL.0000000000206879}, eprint = {//www.ebmtp.com/content/early/2023/02/07/WNL.0000000000206879.full.pdf}, journal = {Neurology} }